Crohn's and Colitis UK
Crohn's and Colitis UK is a United Kingdom charity supporting people affected by Crohn's disease, ulcerative colitis and related inflammatory bowel diseases.
Last updated August 24, 2026
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Overview
Crohn's and Colitis UK is a United Kingdom charity focused on Crohn's disease, ulcerative colitis and other forms of inflammatory bowel disease, commonly abbreviated as IBD. The organization was established in 1979 under the name National Association for Colitis and Crohn's Disease, or NACC, and later adopted the Crohn's & Colitis UK identity to describe its role more directly to the people it serves. The charity brings together people living with Crohn's disease and colitis, their families and carers, and healthcare professionals involved in IBD diagnosis and treatment. Its work is intended to address both the practical and social consequences of these conditions. Crohn's disease and ulcerative colitis can be long-term, relapsing illnesses, and the organization provides information and support to help people understand their conditions, navigate treatment and manage daily life. A major part of Crohn's and Colitis UK's role is public and professional information. It communicates about symptoms, diagnosis, treatment and self-management, while also helping patients and families find appropriate support. The charity's audience includes people of different ages and at different stages of the IBD journey, as well as healthcare workers seeking reliable disease information. The organization also works with the United Kingdom health sector to encourage earlier diagnosis and improvements in the treatment and management of IBD. Its health-policy and campaigning role is directed toward better services, greater awareness and stronger support for people with Crohn's disease and colitis. This places the charity between patient advocacy, public education and health-service improvement rather than commercial healthcare provision. Research is another core area. Crohn's and Colitis UK funds research intended to improve understanding of the causes of Crohn's disease and colitis and to identify better treatments. In this respect, its activities complement its support and campaigning work: research seeks longer-term advances, while information and advocacy address the immediate needs of patients and families. The charity operates in the United Kingdom and is associated with a national community of people affected by IBD. Public reference material describes Crohn's disease and colitis as affecting more than 500,000 people in the UK. The organization is therefore positioned as a specialist national patient charity whose public identity combines disease information, support, research funding and campaigning for improved care.
History
Crohn's and Colitis UK was founded in 1979 as the National Association for Colitis and Crohn's Disease, generally known as NACC. Its creation reflected the need for a dedicated UK organization representing people with Crohn's disease and colitis, conditions that are both forms of inflammatory bowel disease. Over time, the charity developed a broader role encompassing patients, families, carers and healthcare professionals. The organization has built its work around four connected areas. First, it provides information and support to help people understand and manage Crohn's disease and colitis. This includes serving people at different ages and points in their experience of IBD, as well as those close to them. Second, it works with the UK health sector on diagnosis, treatment and long-term management, seeking improvements in the quality and accessibility of care. Third, Crohn's and Colitis UK funds research. Its research role is directed toward increasing knowledge of the causes of Crohn's disease and colitis and developing better approaches to treatment. Fourth, it campaigns for increased public awareness, improved services and greater support for patients. These functions have made the charity both a source of patient-facing guidance and an advocate for change in the wider healthcare system. The later Crohn's & Colitis UK name replaced the older NACC identity and more clearly communicated the conditions at the center of the charity's work. The organization remains UK-focused and serves a population described in public reference material as exceeding 500,000 people with Crohn's disease or colitis. Its present identity is therefore the result of an evolution from a disease-specific membership association into a national charity combining support, education, research and advocacy.
- 1979
Organization founded as NACC
[1]The organization was established as the National Association for Colitis and Crohn's Disease, abbreviated NACC.
Adoption of the Crohn's & Colitis UK identity
[1]The charity later adopted the Crohn's & Colitis UK name, replacing its former NACC identity and making its disease focus more explicit.
Products and positioning
A specialist UK patient charity combining practical information, community support, research funding and campaigning for people affected by Crohn's disease, ulcerative colitis and related inflammatory bowel diseases.
Patient education
Crohn's disease and colitis information
Information and educational material explaining Crohn's disease, ulcerative colitis and related inflammatory bowel disease issues. The material is intended to help patients and families understand symptoms, diagnosis, treatment and ongoing condition management.
Support services
Patient and family support
Support for people living with Crohn's disease or colitis and for their families and carers. The offering addresses the practical need for reliable guidance and a connection with an organization dedicated to IBD-related concerns.
Professional education
Healthcare professional information
Resources and engagement intended for healthcare professionals involved in the diagnosis, treatment and management of inflammatory bowel disease.
Research support
IBD research funding
Funding for research into the causes of Crohn's disease and colitis and into improved treatments, supporting the charity's longer-term objective of advancing knowledge and patient outcomes.
Sources3 sources
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