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Brain Tumour Foundation of Canada

A Canadian organization providing support, education, information and research funding for people affected by brain tumours.

Last updated September 15, 2026

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Overview

Brain Tumour Foundation of Canada is a Canadian organization that provides support, education, information and research funding related to brain tumours. It traces its origins to Kelly Northey, who was diagnosed with a brain tumour at age 8 in 1981 and died in January 1982; shortly after her death, her father Steve Northey, neurosurgeon Dr. Rolando Del Maestro and his wife Pamela, a neuroscience nurse, met to create a resource to aid families in a similar situation. The organization offers care and support resources, including Facebook support groups and virtual support, engages volunteers and community events, and supports research through funding opportunities, the Brain Tumour Registry of Canada, the Brain Tumour Tissue Bank and clinical trials. Its office is located in London, Ontario.

History

Brain Tumour Foundation of Canada began with Kelly Northey, who was 8 years old when she was first diagnosed with a brain tumour in 1981. At that time there was little organized support or specific research into brain tumours, and patients struggled alone with the physical and emotional effects of the disease. In January 1982, after a six-month struggle, Kelly died. Shortly after her death, her father Steve Northey, Dr. Rolando Del Maestro — a neurosurgeon working on a brain research laboratory — and his wife Pamela, a neuroscience nurse, met around a kitchen table to create a resource to aid families in a similar situation. Steve described it as a father's way of dealing with his grief and trying to turn a bad thing into a good thing. By providing support, education, information and research funding, the organization has worked to make a difference in the lives of the over 55,000 Canadians currently living with a brain tumour and thousands more before them. Since 1982, more than $10 million in direct funding to research has been raised.

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Provides support, education, information and research funding for people affected by brain tumours across Canada.

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